Let’s put this disease in perspective:
Motor Neuron Disease is the most debilitating of all neurodegenerative diseases, as physical degeneration is rapid whilst the patient’s mental capacity remains intact right until the end. They are fully aware of their impending death and they suffer each day as they lose mobility. Watching and caring for a loved one with Motor Neuron is horrendous.
Every day 2 Australians pass away from MND
Every day 2 Australians are diagnosed with MND
The average life expectancy is 27 months from diagnosis
The cost burden of the disease to pay for management, care and drugs is $1.1 million per person which is huge!