We are a restless pirate organisation that is focussed on chronic illness, specifically Motor Neuron Disease (also called ALS). We are ambitious and determined. Curious and imaginative. We believe that collaboration is the most powerful way to find the answers we seek. We don't make big, bold claims but we do make progress no matter how large or small. And we think that's the important bit. Oh, also, we call the disease Bertha because we don’t find labels helpful, in fact quite often they become the opposite.